Oliver's journey began with missed developmental milestones and a misdiagnosis of Cerebral Palsy. After years of searching, a 2020 genetic test revealed a rare DNM1L variation. Missed developmental milestones and a misdiagnosis of Cerebral Palsy after years of searching, a 2020.

In 2020, a breakthrough genetic test revealed the rare DNM1L variation behind Oliver’s condition. While this discovery was a relief, it also exposed the lack of research and support for families facing this diagnosis. This moment sparked a commitment to take action.

Faced with the realities of a rare genetic disorder, Oliver's family realized they weren't alone. Determined to create a supportive community for others on similar journeys, they began connecting with families, researchers, and medical professionals to share resources and knowledge.

Oliver's family founded the DNM1L Foundation. Today, the foundation is dedicated to advancing research, education, and support for families affected by DNM1L variations, turning a personal struggle into a mission to improve lives and inspire hope.